Mapping, infrastructure, and data analysis for the brazilian network of rare diseases: protocol for the RARASnet observational cohort study (2021)
- Authors:
- USP affiliated authors: ALVES, DOMINGOS - FMRP ; YAMADA, DIEGO BETTIOL - FMRP ; BERNARDI, FILIPE ANDRADE - Interunidades em Bioengenharia ; CARVALHO, ISABELLE - ICMC ; COLOMBO FILHO, MÁRCIO ELOI - Interunidades em Bioengenharia ; NEIVA, MARIANE BARROS - ICMC ; LIMA, VINÍCIUS COSTA - Interunidades em Bioengenharia
- Unidades: FMRP; Interunidades em Bioengenharia; ICMC
- DOI: 10.2196/24826
- Subjects: TECNOLOGIAS DA SAÚDE; SISTEMAS DE INFORMAÇÃO; DOENÇAS RARAS
- Keywords: rare disease; digital health; health observatory; data science; health network
- Agências de fomento:
- Language: Inglês
- Imprenta:
- Source:
- Título: JMIR Research Protocols
- ISSN: 1929-0748
- Volume/Número/Paginação/Ano: v. 10, n. 1, p. 1-16, Jan. 2021
- Este periódico é de acesso aberto
- Este artigo é de acesso aberto
- URL de acesso aberto
- Cor do Acesso Aberto: gold
- Licença: cc-by
-
ABNT
ALVES, Domingos et al. Mapping, infrastructure, and data analysis for the brazilian network of rare diseases: protocol for the RARASnet observational cohort study. JMIR Research Protocols, v. 10, n. Ja 2021, p. 1-16, 2021Tradução . . Disponível em: https://doi.org/10.2196/24826. Acesso em: 26 dez. 2025. -
APA
Alves, D., Yamada, D. B., Bernardi, F. A., Carvalho, I., Colombo Filho, M. E., Neiva, M. B., et al. (2021). Mapping, infrastructure, and data analysis for the brazilian network of rare diseases: protocol for the RARASnet observational cohort study. JMIR Research Protocols, 10( Ja 2021), 1-16. doi:10.2196/24826 -
NLM
Alves D, Yamada DB, Bernardi FA, Carvalho I, Colombo Filho ME, Neiva MB, Lima VC, Félix TM. Mapping, infrastructure, and data analysis for the brazilian network of rare diseases: protocol for the RARASnet observational cohort study [Internet]. JMIR Research Protocols. 2021 ; 10( Ja 2021): 1-16.[citado 2025 dez. 26 ] Available from: https://doi.org/10.2196/24826 -
Vancouver
Alves D, Yamada DB, Bernardi FA, Carvalho I, Colombo Filho ME, Neiva MB, Lima VC, Félix TM. Mapping, infrastructure, and data analysis for the brazilian network of rare diseases: protocol for the RARASnet observational cohort study [Internet]. JMIR Research Protocols. 2021 ; 10( Ja 2021): 1-16.[citado 2025 dez. 26 ] Available from: https://doi.org/10.2196/24826 - National network for rare diseases in Brazil: the computational infrastructure and preliminary results
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Informações sobre o DOI: 10.2196/24826 (Fonte: oaDOI API)
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