Mapping, infrastructure, and data analysis for the brazilian network of rare diseases: protocol for the RARASnet observational cohort study - Alves, Domingos; Yamada, Diego Bettiol; Bernardi, Filipe Andrade; Carvalho, Isabelle; Colombo Filho, Márcio Eloi; Neiva, Mariane Barros; Lima, Vinícius Costa; Félix, Têmis Maria (JMIR Research Protocols, 2021)